We want to hear from you!
We are seeking primary caregivers of individuals with Down syndrome who are NC residents for a research study to help us prepare for the new UNC Down syndrome Clinic to ensure the clinic is built to optimize the health of your child and to support your family (IRB #- 24-2540). We want to know what challenges you are facing now with the medical care of your child, what you would like to see in the UNC Down syndrome clinic, and what advice you would give to doctors and other families.
We will be hosting virtual focus groups based on different age groups as well as different health concerns. This clinic will be located in Chapel Hill but will serve residents of any area of NC, so we hope to hear from as many different caregivers around the state as possible. Please fill out this brief form if you are interested in participating: https://forms.gle/
If you have questions, reach out to Beth Cosgrove, beth11@email.unc.edu or (703) 725-9194.
